PROJECT

MyCyFAPP is a Project funded by the European Commission under the Framework Programme for Research and Innovation HORIZON 2020. A total of 12 Organisations from 7 European countries have joined backgrounds and expertise to successfully achieve a new Pancreatic Enzyme Replacement Therapy (PERT) plus make it accessible and user friendly to Cystic Fibrosis patients and families, and available as a mobile APP.

OBJECTIVES

- To generate the necessary resources (guidelines, games, algorithms) for the patients self-management of the disease, especially the enzyme replacement therapy and the diet.

- To obtain an ecosystem of APPs, adapted to age specificities and built on the patients real needs and requirements along a co-developing process.

- To implement the new tool into the CF participating centres and into the market of the mHealth APPs

RESULTS

MyCyFAPP will replace traditional in hospital out patients consultations (e.g. physicians and dieticians) by mobile consultations, allowing for a continuous follow-up and fast establishing of interventions if needed, and will avoid tedious and expensive analytical determinations (stools collection) improving thus health nutritional status and quality of life of patients and families, together with achieving an economic save both for the Health Systems and for the families.