Newsletter

Receive MyCyFAPP newsletter in your mailbox

*|MC:SUBJECT|*

EUROPEAN COMMISSION ASSESS THE WORK PERFORMED AT MYCYFAPP AS "EXCEPTIONAL" WITH "IMMEDIATE OR POTENTIAL IMPACT


MyCyFAP presents latest results to the European Commission


Last 30th April MyCyFAPP presented its results to the European Commission reviewers in the 2nd interim review. The main areas of the project presented were the in vitro digestion studies required for the identification enzyme requirement prediction algorithm that is already being tested in the self-management APP as well as the organization and the initiation of the clinical trial and the results of the dissemination tasks. 

The evaluation of reviewers could not have been more favourable: not only they acknowledge the smooth development of MyCyFAPP, they also highlighted the expected “high impact” of the Project for patients with cystic fibrosis, their families and their health professionals. Reviewers also highlighted the “innovative” approach of the scientific knowledge generated. 

With all MyCyFAPP products being tested in the clinical trial, we address this last stage of the Project excited to get final results to share with the Cystic Fibrosis community and hoping to contribute to the wellbeing of patients. 

By the end of 2018 first results from the clinical trial will be analyzed and discussed so MyCyFAPP will be able to continue its path towards the improvement of the quality of life of children with cystic fibrosis. 

LAST SCIENTIFIC PUBLICATIONS
Effect of cooking methods and intestinal conditions on lipolysis, proteolysis and xanthophylls bioaccessibility of eggs. Journal of Functional Foods. Read more.

User Needs in the Development of a Health App Ecosystem for Self-Management of Cystic Fibrosis: User-Centered Development Approach JMIR Mhealth. Read more. 

Lipolysis kinetics of milk-fat catalyzed by an enzymatic supplement under simulated gastrointestinal conditions. Food Bioscience. Read more.

MYCYFAPP ON THE TOP 5 MOST-DOWNLOADED PAPERS


One of MyCyFAPP papers is one of the top 5 most-downloaded papers in 2017 from Journal of Cystic Fibrosis. Congratulations to the Consortium! 

Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis: a European multicentre study with reference to current guidelines” 
Read more

HANDS-ON EXHIBITION AT THE EUROPEAN CF CONFERENCE


Visitors to the European Cystic Fibrosis Conference try the self-management APP and the game APP developed by MyCyFAPP

The European Cystic Fibrosis Conference (ECFS Conference) is one of the most relevant events in the field of Cystic Fibrosis. Every year, around 2000 people, from researchers to health care professionals, patients and their caregivers, gather to share latest advances and innovations in the treatment of the disease. This event is the ideal platform for MyCyFAPP to share the result of the research.
  

In this edition, the Consortium opted for participating in a workshop where patients and professionals had the opportunity to try by themselves the self-management app. The enthusiastic feedback received from the participants encourages  MyCyFAPP to keep the hard work to make the products available as soon as they will be ready after the clinical trial. 

Apart from the workshops, the innovation zone hold during the three days of the Congress a booth dedicated to MyCyFAPP and two oral communications. 

ORAL COMMUNICATIONS AT ECFS


Joaquim Calvo-Lerma presented “A first approach for an evidence-based method to adjust PERT: in vivo validation of the in vitro model”

 


Mike Boon presented “Validation of the PEDsQL GI symptom scale to evaluategastro-intestinal symptoms in children with CF”


AWARD


XXV Congress of the Paediatric Society of Gastroenteroly, Hepatology and Nutrition awarded Joaquim Calvo-Lerma with the 2nd award in short communication gastroenterology for the presentation of "Adjustment Method for enzymatic replacement method in cystic fibrosis".


MYCYFAPP IN THE MEDIA


The Policlinic Hospital of Milan participates in the trial of an APP for children with cystic Fibrosis Read more

The Spanish National Museum of Science and Technology will exhibit MyCyFAPP Project. Read more

 

VII PROGRESS MEETING


The Università degli Studi di Milano hold the VII MyCyFAPP Progress Meeting. Four months before the end of the clinical trial, this meeting was an opportunity for discussing the evolution of the clinical trial.

MYCYFAPP IN THE MUSEUM

The Spanish National Museum of Science and Technology will exhibit MyCyFAPP research as an example of the “high-quality research” performed in the Spanish Universities. 

MyCyFAPP will be one of the eight Project showcased for a year with the aim of bringing science to the general public. 
Visitors to the exhibition will have the opportunity to learn about cystic fibrosis. In addition, demo videos of applications and images showing the research process will be displayed

A great opportunity for showing how research can contribute to improve people’s life.

HALFWAY INTO THE CLINICAL TRIAL

More than 170 patients from five European countries are already testing the APP


Last January MyCyFAPP Consortium launched the clinical trial phase in 5 European countries.  During six months, pediatric Cystic Fibrosis patients, their families and their health care Cystic Fibrosis teams test the digital ecosystem developed. This phase will provide the basis for the evaluation of the APP and will shed light into the optimal amount of enzymes required for each patient depending on food consumed. 

The final goal of MyCyFAPP is offering patients a scientific-validated tool for self-managing their disease with the supervision of Health Care Professionals. In this way, MyCyFAPP aims at boosting the patient-centred approach to healthcare improving their quality of life.

By the end of October, once the clinical trial is finished, researchers, doctors, nutritionists, nurses and psychologists will analyze and discuss the results.

If you want to receive updates of MyCyFAPP, remember you can sign up for our newsletter and receive it in your inbox.

HOW MYCYFAPP CAN MAKE A DIFFERENCE INTO PATIENTS' LIFE

Respiralia swimming Tour around Formentera against Cystic Fibrosis
Congratulations to our administration manager, Sara Carrasco, who joined the XIX swimming tour around 
Fomentera against Cystic Fibrosis. 


Respiralia

MYCYFAPP CONSORTIUM

Multidisciplinary research team, integrated by nutritionists/dieticians, paediatric gastroenterologists and pulmonologists, food technologists, food engineers, informatics, psychologists and experts specialised in new technologies areas of knowledge and experts.
Copyright © *|2018_YEAR|* *|LIST:MYCYFAPP NEWSLETTER|*, All rights reserved.
*|LIST:NEWSLETTER|*

Our mailing address is:
*|INFO@MYCYFAPP.EU* 

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.
 






This email was sent to *|EMAIL|*
why did I get this?    unsubscribe from this list    update subscription preferences
*|LIST:ADDRESSLINE|*

*|REWARDS|*

Subscribe to our mailing list

* indicates required

Privacy pokicy

You can change your mind at any time by clicking the unsubscribe link in the footer of any email you receive from us, or by contacting us at info@mycyfapp.eu. We will treat your information with respect. For more information about our privacy practices please visit our website. By clicking "suscribe", you agree that we may process your information in accordance with these terms.

We use MailChimp as our marketing automation platform. By clicking below to submit this form, you acknowledge that the information you provide will be transferred to MailChimp for processing in accordance with their Privacy Policy and Terms.

logo DEFINITIVO copy

euflagProject funded by the European Union
under the Grant Agreement number 643806

logoehealth

MyCyFAPP is a project funded by the European Commission under the Research and Innovation Framework Programme “Horizon 2020”