How can an app improve the general wellbeing of patients with cystic fibrosis?

"It is not only an APP able to predict the amount of enzymes you need to take, it also offers you a nutritional guide, where you can register your feelings" Jose Carlos, Cystic Fibrosis patient.

Growing up means learning to be independent and learning to take care of yourself. When having a chronic condition, is not so easy to do so for this reason tools as the ones developed by MyCyFAPP are essential for guiding teenager in their path to adulthood.

MyCyFAPP Project has developed a digital ecosystem to help people with cystic fibrosis, their families and healthcare professionals to manage their disease.

MyCyFAPP offers a new approach to healthcare in which patients have an active role. For this reason, the educational tools are of the utmost importance. The self-management APP contains a guide of nutrition in cystic fibrosis.

Patients with chronic illness need to know they can count on the help of Health Care Professionals, for this reason, the Web Professional Tool is linked to the self-management APP. In this way, the data patients introduce in their mobiles is automatically sent to their healthcare team, saving time and accessing to a faster feedback.

MyCyFAPP Project is an EU-funded research and innovation project that aims to develop an innovative tool for helping Cystic Fibrosis patients to get a real-time optimal enzyme dosage prediction for a specific meal.

Ehealth technologies can contribute to give confidence to patients

When we started to look for solutions we realized that there was nothing to help patients to calculate their optimal pancreatic dose based on scientific evidence… so… we started to think about a solution

At MyCyFAPP we are fully convinced that European collaboration is the forward for any project, because together we reach more people and find better solutions.

When you suffer from a chronic disease, you probably know why research can make a difference to many people's lives. As one of the patients explains, MyCyFAPP aims to get reliable result to improve the quality of life of people with Cystic Fibrosis.

MyCyFAPP Project is an EU-funded research and innovation project that aims to develop an innovative tool for helping Cystic Fibrosis patients to get a real-time optimal enzyme dosage prediction for a specific meal. Besides, nutritionists/dieticians and doctors at the hospitals will follow-up patients’ progress, and will be able to in real time send recommendations or corrections.

MyCyFAPP Project aims to help families to manage Cystic Fibrosis not only by improving the calculation of Pancreatic Enzyme Replacement Therapy but also by helping them to understand the illness. Accurate information, based on scientific knowledge written in lay language including images and visual material are keys to improve understanding and to help patients to become actively involved in their treatment.

logo DEFINITIVO copy

euflagProject funded by the European Union
under the Grant Agreement number 643806

logoehealth

MyCyFAPP is a project funded by the European Commission under the Research and Innovation Framework Programme “Horizon 2020”